Lynsey Chediak is Rarebase’s Head of Impact and Patient Experience. She was born with a rare genetic bone and joint disease called arthrogryposis. Formerly, she led the inaugural precision medicine portfolio at the World Economic Forum. She is also the Founder and CEO of a rare disease patient advocacy non-profit, working to increase patient engagement across pediatric hospitals in the USA.
In Episode #1 of Rarebase Remarks, Lynsey shares her own experience with rare disease, her many professional contributions to the community, and her goals at Rarebase.